About the Epilepsy Association

The Epilepsy Association is a nonprofit organization located in Cleveland, Ohio, that assists children, families, and adults in Northeast Ohio who are struggling to deal with the difficult challenges epilepsy can present. For more than thirty five, the agency has been offering a range of services to individuals affected by epilepsy in an eleven-county area of Northeast Ohio.

The Epilepsy Association recognizes the unique needs of individuals with epilepsy. Our staff of nine professionals is dedicated to providing high-quality service to address the varied needs of people with epilepsy. Staff provide assistance ranging from answering questions from a one-time caller to the agency, to providing ongoing case management and counseling an individual with epilepsy who is struggling to maintain a stable living situation.

Services offered by the Epilepsy Association fall into three main categories: information and referral, direct social services, and community-based epilepsy education. For specific information about services, please visit the services section of this website.

The About the Epilepsy Association section of our website provides more information about the organization of the agency, including our history, mission and vision, staff members, and Board of Trustees/ Professional Advisory Board. You can also download our most recent Annual Report, and sign up to receive our newsletter. Please contact us if you would like more information about the Epilepsy Association.

Epilepsy Association History

The agency began in the mid-1950’s as the Parents Crusade on Epilepsy and later became the Committee on Epilepsy of the Family Health Association. The Committee on Epilepsy mainly provided information and referral services, yet the founders anticipated a future expansion. Studies documented the great need for specialized epilepsy services and soon professional and public education, counseling, employment and advocacy services were added. In 1972, The Committee on Epilepsy obtained funding from Cuyahoga County United Way Services and became an independent agency.

Throughout its history, the Epilepsy Association has remained dedicated to serving individuals in Northeast Ohio affected by epilepsy. The agency’s service area currently includes eleven counties in Northeast Ohio. In 2008 the agency provided important services to 8,000 people in our community.

Epilepsy Association Accreditations and Licensure

The Epilepsy Association is licensed and accredited by several entities, including: 

• CARF (Commission on Accreditation of Rehabilitation Facilities)
• ODMH (Ohio Department of Mental Health)
• ODMRDD (Ohio Department of Mental Retardation/ Developmental Disabilities)

The Epilepsy Association partners with several local organizations to provide services, including: 

• ADAMHS Board of Cuyahoga County
• United Way of Greater Cleveland

Please follow the links below to download the Epilepsy Association's Client's Rights Policy, Code of Ethics, and Privacy Notice. The documents are saved in a Microsoft Word format.

• Client's Rights Policy
• Code of Ethics
• Privacy Notice